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“PLEASE HELP ME. I need your help for my son to survive." -Baby John's Father
“The blister wound on his leg is the worst without any skin from his ribs all the way down to the tips of his toes.”
The father’s depressed plea rang out. His son Baby John, not yet three days old, lay suffering in a bed with severely painful blisters and gaping wounds that threatened his very life. These were bloody blisters and wounds the father could neither heal nor stop from emerging on his son’s tiny face and body time and time again. Time was running out.
When Baby John was born, his parents learned he had rare EB Blistering Skin Disease. They had never heard of the disease. Now immersed in their own daily struggle and nightmare, they are all too familiar with the heartbreak that accompanies it: constant cries of pain, emerging blisters on the baby’s face, head, chest, arms, hands, fingers, legs, feet, and toes, a lack of weight gain due to bloody mouth, tongue and gum sores, and, reopened and bleeding wounds at every painful bandage change. And, for Baby John, the disease is getting worse every day.
“It’s so painful to see as parents. I have to hold Baby John down so my weeping wife can change his bandages while we watch him bleed, hurt and cry. We feel helpless and numb.”
The infant had been in the hospital three weeks in excruciating pain when the father’s desperate cry came to No Baby Blisters. Of critical concern was the huge wound on the child’s right leg that had no skin from the infant’s lower ribs to his toes. With no access to the type of ointments and advanced bandages that could temporarily help, the father was concerned for his son’s life. Every bandage changed tore more skin away enlarging the wound increasing the risk of death from infection and dehydration. The distraught father knew the danger this wound posed. He prayed for help.
That help came. Thanks to the generous support of our donors, No Baby Blisters was able to immediately send Baby John’s father the much-needed funds for ointments and advanced bandages that saved his son’s leg, which saved his very life!
But Baby John’s battle for life is far from over. He lives trapped in special bandages in severe pain with the constant threat of infection, sepsis and death.
Baby John’s father said he is now in a waiting game—waiting to see what toll this disease will take on his son next. His blisters, pain, and skin loss continue putting his life at risk. His toes have fused together. At No Baby Blisters, we are working tirelessly, so that what comes next for Baby John and his family is a cure. Baby John and the other 500,000 children suffering from EB around the world deserve a life free of pain and full of hope.
“We are praying for a miracle because he’s crying in pain. A cure is necessary for all babies suffering from EB’s cruel pain,” said Baby John’s father. “I will do everything possible to cure my son. I got a second job now working 16 hours a day to help pay the medical expenses. I’m looking forward to No Baby Blisters help and close interest in my son’s pain relief and cure.”
EB disease is terrifying. Please help any way that you can. Positive life-saving work is already being done with your help until we find a full-body cure. Let us continue to help Baby John and others like him. Finding a life-saving cure is urgent. Thank you for your compassionate, merciful donations.
Our God-given Mission is to save the sickest, most medically neglected suffering in severe pain with terminal diseases. Their lives depend on your loving donations.
If you can donate Monthly, it will help babies like John never run out of severe pain medicine, life-saving bandages, antibiotics, wound-healing nutrition, and medical care. Monthly donations will also provide critical funding to accelerate our expert, innovative medical research for a full-body cure for EB disease and other devastating diseases. Thank you for any help you can give!
Your donations are saving Ashley‘s life
Tell everyone hello and your name. Hi, I’m Ashley. What does EB Blistering Skin Disease do to your skin? EB causes my skin to blister off and it is very painful. What have the donations done for you? I always have bandages, medicine and food. Your donations make my pain less. What do you want to tell people that have donated to No Baby Blisters to save you and others? Thanks for donating to save my life. God bless you. Thanks again. Bye!
We invite you to become a recurring monthly donor now to make sure Ashley and thousands of other children NEVER run out of severe pain medicine, life-saving surgeries, bandages, medicines and therapeutic nutrition.
Your Donations Literally Saves Lives
This is the leg of Baby John. Your tax-deductible donations immediately sent him life-saving bandages and ointments to save his life until our experts can find a full-body cure for EB blistering skin disease. Right now there is no full-body cure for EB, so Baby John is still fighting for his life in severe pain. Your donation today will instantly accelerate our Fast Cure Plan research for this terrible disease. In severe cases, babies born with EB do not live to celebrate their first birthday. Together, we can change this. This difference in Baby John’s leg is dramatic — and we can do this more often and better with your help! Join us to find a full-body cure. And if you’ve ever wondered if your donation “makes a difference,” look at Baby John. It does! Other EB babies in pain are immediately waiting clean bandages, ointments, and a full-body cure – possible only because of your generous donations.
Your donations are saving Joyce's life
“Hi! I am Joyce. Thank you so much for recently donating to save my life and many other forgotten children suffering with EB Blistering Skin Disease, Hydrocephalus and Cancer. My disease is a painful and deadly disease. Your donation to No Baby Blisters helps me to never run out of bandages, antibiotics and special nutrition. Thank you again.” -Joyce
We invite you to become a recurring monthly donor now to make sure Joyce and thousands of other children NEVER run out of severe pain medicine, life-saving surgeries, bandages, medicines and therapeutic nutrition.
EB is the Worst Disease You Have Never Seen
This is the leg of Baby John. Your tax-deductible donations immediately sent him life-saving bandages and ointments to save his life until our experts can find a full-body cure for EB blistering skin disease. Right now there is no full-body cure for EB, so Baby John is still fighting for his life in severe pain. Your donation today will instantly accelerate our Fast Cure Plan research for this terrible disease. In severe cases, babies born with EB do not live to celebrate their first birthday. Together, we can change this. This difference in Baby John’s leg is dramatic — and we can do this more often and better with your help! Join us to find a full-body cure. And if you’ve ever wondered if your donation “makes a difference,” look at Baby John. It does! Other EB babies in pain are immediately waiting clean bandages, ointments, and a full-body cure – possible only because of your generous donations.
What is EB? Learn in 60 Seconds.
EB babies suffer with blisters, skin loss, severe pain, and death.
In EB's most severe form, many babies don't live to celebrate their first birthday
EB (epidermolysis bullosa) is a genetic blistering skin disease that causes a baby’s skin to blister and peel off creating extreme pain and death in its most severe forms. EB is caused by a gene mutation that creates a very weak bond between the baby’s skin layers in the epidermis and dermis. Friction, pressure, and heat on the skin causes blisters and skin loss. Even a hug from mom or dad can cause life-threatening blisters and skin loss, and extreme pain that can’t be controlled with our best medicines. EB affects both genders and all ethnicities equally. It is not getting the attention it needs to find a full-body cure.
No Baby Blisters is the voice for over 500,000 worldwide suffering from EB
Help us rescue EB babies from the terrible pain and death caused by EB. Mutated genes cause the skin to blister off resulting in extreme pain, infection, scarring, amputations, and death. A full-body cure is urgently needed. *Pictured is No Baby Blisters’ spokesperson Baby Mirachael
In EB's most severe form, many babies don't live beyond a year
Life expectancy for those who do live is often less than 30 years and filled with blistering, terrible pain, infections, scarring, itching, amputations, bullying, and catastrophic medical bills. *Pictured is No Baby Blisters’ spokesperson Baby Nofer
Like a butterfly's wings, their skin is so fragile, a simple touch can cause severe pain. Hugs shouldn't hurt
Easily injured skin creates severe pain, blisters, infection, and scars. Forever bandaged, their skin is an inescapable cocoon separating them from their parents’ loving hugs. *Pictured is No Baby Blisters’ spokesperson Baby Ashley
Why hasn't this disease been cured?
Orphan diseases are conditions affecting fewer than 200,000 people nationwide, like EB, Cystic Fibrosis, Lou Gehrig’s Disease, or Tourette Syndrome.* Cures for orphan diseases, like EB, have historically gone unfunded by big pharma and government.
Numerous type of creams to treat wounds are approved or being developed, but no true cure for the entire body. What you see on the skin is also happening on the inside. A full-body systemic cure is needed.
*National Institutes of Health
No Baby Blisters Offers great hope in its multimodal Fast Cure Plan
Our research team includes top doctors with patents in genetic skin therapy, pioneering researchers, scientific innovators, and FDA experts to create an affordable EB cure to end the pain and death.
Our Founder Dr. Aaron Tabor, MD and His Heartbreaking Discovery
Aaron Tabor, MD, Founder of No Baby Blisters, is an NIH-funded skin researcher. He is also the Founder and CEO of GENIE Therapeutics, a biotechnology company developing cures for skin scarring, pigmentation and wrinkles.
TO SAVE THE FORGOTTEN, MEDICALLY NEGLECTED CHILDREN, I FOUNDED NO BABY BLISTERS CHARITY.
GREAT NEWS! You can save our innocent, forgotten and medically neglected children from miserable, painful daily lives by donating as little as $3 a month. Any amount makes a huge impact.
Our good-hearted, compassionate, and loving community of Monthly Donors are noble guardian angels of mercy for the forgotten, medically neglected children. Working together, we guard the lives of the sickest, most disadvantaged children in the world struggling in pain to stay alive.
We are committed to do everything possible to NEVER let them run out of severe pain medicine, life-saving surgeries, medical supplies and wound-healing food that reduce their pain, suffering, and death.
URGENT NEED FOR MONTLY DONORS TO SAVE LILY’S LIFE!
Because Lily’s only hope is good-hearted Donors just like you, will you become Lily’s ‘Guardian Angel’ right now to reduce her severe pain and help save her life by donating Monthly? If you are already a Monthly Donor, thank you.
Click to choose a Monthly donation plan to save Lily and so many others, and join more than 500,000 loving, compassionate Donors!
Will you help us save EB babies from terrible pain and death?
This is the leg of Baby John. Your tax-deductible donations sent him life-saving bandages and ointments to save his life until we can find a full-body cure for EB. Right now there is no full-body cure for EB, so Baby John is still fighting for his life in severe pain. Your donation today will accelerate our Fast Cure Plan research for this terrible disease. In the most severe cases, babies born with EB do not live to celebrate their first birthday. Together, we can change this. This difference in Baby John’s leg is dramatic — and we can do this more often and better with your help! Join us to find an EB full-body cure. And if you’ve ever wondered if your donation “makes a difference,” look at Baby John. It does!
Our babies have up to 80% skin loss and severe pain from EB Blistering Skin Disease. EB is deadly with no full-body cure. Your donations buy life-saving pain medicines and special bandages, so if God puts it on your heart to donate, the children and their families will be very grateful and blessed.